Next week the whole family seems to have doctor appointments, not just Kelly for a change. Daddy goes to the surgeon to check on his shoulder...we think it's healing nicely. He had a torn Labrum? Sabrina and Kelly go for their four year check up. Mommy goes for her mammogram. I think my family alone is keeping the medical community rich. Kelly also goes for an EEG at CHOP on Thursday. She always seems to get the same review. She's doing well see you again in 3 months, 4 months, 6 months or a year...depending on the specialist.
The I have to schedule dentist appointments for all of us. Haven't found a good one that I like that takes our insurance yet.
I bought a pair of ballet slippers and a pair of tap shoes for Sabrina today. She's starts dance class on the 29th. Its not very formal. 15 minutes of tap, 15 minutes of ballet and 1/2 hr in the gym doing balance bar, uneven bars etc. She had an intro class this week and did not stop smiling from ear to ear the whole time. When I took her to preschool the next day, we pulled into the school which she also loves but said "I want to go to ballet!" Daddy was hoping for a female Tiger Woods but I think we may have a female Barishnikov.
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Ballet.....how fun!!! I hope everyone's appointments go well for you coming up. There are some months that it feels like all we do is go from office to office. We found out today Brooklyn has to get glasses. The doc made it sould like it had nothing to do with Rett, just needs glass but that the glasses should also help with her crossing her eyes...we will see! I bet Kelly will love to watch Sabrina dancing around. That might be tough on you - wishing they both could be dancing around. I have things like that which seem to "trigger" my 'I hate Rett' moments! UGH...
Hey Kelly...
I had to patch one of Kelly's eyes for about a year...She's been seeing an opthamologist since 5 weeks old because she has colobomas...pupils that look like a cat's eye....genetic in nature and probably part of a second syndrome Kelly has but so far has not affected her eyes. The patching was to improve the muscles around the eyes which is directly related to her hypotonia
Great to hear from you.
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