I know this is not a medical blog but just wondering if any one out there has had experience with Donnai-Barrow Syndrome.
It's a very rare genetic syndrome. Only one person in 200,000 in the US is estimated to have it. My daughter might have it
and there is not much info out there. With only five people in million with this syndrome. Not too many people knocking on congress' door to fund research.
Right now it's a toss up between Donnai-Barrow Syndrome and possibly Rett's Syndrome. Either way Kelly is a happy beautiful little girl who loves to climb on chairs and tables just to keep me on my toes.
Oh and her twin sister who has no medical issues just went poo poo on the potty today......YEAH for all those moms going crazy out there eventually it will happen... Of course she made a mess in her night night diaper. Every day is an adventure. : )
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Twelve months later I know but just wondered if you had a diagnosis yet?
My daughter is 15 and suffers from DBS..... well should I say we suffer, she is very happy
Hi I am a grandmother of a special little boy wit DBS HE IS NOW 5 and you are the first person I have spotted on web with a connection to DBS.hope you are all doing well Does your daughter have cochlear implants we are going through assesments at moment LOVE TO HEAR MORE FROM YOU
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Here is some additional information about the "genetics" of this condition that was written by our Genetic Counselor and other genetic professionals: http://www.accessdna.com/condition/Donnai-Barrow_Syndrome/792. I hope it helps. Thanks, AccessDNA
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Erectile dysfunction or ED is actually a health-related problem triggered predominantly mainly because of the hardening with the arteries. Nor are therapies as distressing given it utilized to be from the before times. There are a selection of ED capsules within the sector which have been readily available such as supplements like Levitra and Cialis. These medication can effortlessly be procured with the on the net pharmacies.
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It is a affliction when there's development of deposits about the levels of your penile arteries leading to the erectile tissues prohibit the movement of blood therefore protecting against erection. But erectile dysfunction just isn't an untreatable sickness any longer.
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Marketed by Eli Lilly and Co. But it has been attainable mainly because of the existence of its lively component Tadalafil. Tadalafil performs by enjoyable the hardened penile arteries which increases move of blood so facilitating erection.
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