Kelly slept 12 hours

So Kelly was so exhausted being in her new bed and up at 2:30 am on Sunday morning, that she slept 12 hours last night.. woo hoo....
She is so cute sitting in her bed in the morning, smiling and playing with her pillows,....she really likes it.

she also returns to school tomorrow. We met her teacher today and one of the classroom aides. They were very nice. Each semester her therapy team seems to change too. Now she has a new PT, new OT and new speech therapist....but she loves school no matter what. She had a blast just for the few minutes we were there. Sabrina loves to visit her school too and play with the other classmates and the toys.

View of bed with gates open....

The bed has a triangle pillow under the mattress for Kelly's reflux.

Kelly's adapted bunk bed

I will try to post pictures of Kelly's bunk bed with the customer railing we had made.
I'd be glad to forward pictures directly to any one interested just give me your email.

so you think you can dance....mentions Rett Syndrome

A choreographer couple has a daughter with Rett Syndrome and dedicated their dance to their daughter...one of the couples on so you think you can dance did a beautiful job....link below for anyone wanting to see....

http://www.youtube.com/watch?v=-2VRAHRbmT8

OK...can someone explain why I like this?????

Tink....

HEY>>>>it's my first glitter graphics...now hopefully my blog will be a little more interesting...Tinkerbel is my favorite character in honor of Kelly, my little pixie who won't grow up...or should I say doesn't grow up....I wonder if she would if she could or does she know something we don't. They say special needs children are actually angels sent from heaven to help others on earth...maybe she knows a lot more than we think...problem is she's not talking...or maybe she just doesn't want to....????

Life is Good

OK...so life is not perfect as a matter of fact at times it really sucks but for today...for this moment life is good. Lief is on vacation this week and next. Kelly is out of school until July 8th and then she starts extended school year, six weeks over the summer so she does not lose the skills she is starting to show.
Sabrina is out of school until Sept. but will have some half day classes at the local school to keep her occupied. I'm planning our trip down the shore starting Thursday, LBI here we come. Money is tight...gas prices are starting to affect us,..Lief's job is stressful...but life is good. I'm content...my daughters are beautiful and smart. I keep thinking that if Kelly has the same intelligence that her sister Sabrina shows and the the developmental delays are affecting her but she can understand so much now...or at least I think she understands....I wonder how really smart she would have been without Rett syndrome.
I love my husband...he's wonderful...I really like living in our new town...well it'll be four years this August...time flies...we moved here when the girls were six months old. They are four years, four months and three weeks old today.
Life is good...