I haven't blogged in three months....shame shame on me...sorry for any one who really cares...
I would blog more often if I could post pictures of my beautiful girls but I promised Lief I wouldn't. It would definitely be more interesting if I could...I will post an occassional back or side view...he can't get too mad at that.
Kelly was seen by a new Pediatric Neurodevelopmental Dr....and whereas there was nothing new to add....she did suggest Kelly see a Pediatric Physiatry...a doctor of physical therapy I guess. That doctor can suggest adaptive equipment, chairs etc that Kelly might benefit from. I've only had her get PT through early intervention since she's been 9 months old and now through school. I never knew there was a medical doctor in that field and now one ever suggested I go. I think will continue to see the new neurodevelopmental dr too since she made the suggestion. Kelly sees so many doctors but I will change if I don't get that "warm fuzzy" feeling that Kelly really matters to the dr or if the dr isn't very proactive. The last neuro was too laid back...after we got the Rett diagnosis she sent me printouts from the internet that I had alreay read, nothing very positive so we moved on.
School is out at least for a while. Sabrina will have a few summer classes at the local school for arts and crafts and they have a playground for outside playing with her friends. and she starts swim lesson Saturday. Kelly is off of school for three weeks. We're going to Long Beach Island for three days next week...can't wait. She'll have summer school from July 8th through Aug. 15th and then off for another three weeks until next semester starts Sept. 4th ???? She's also having a few swim lessons from on OT in July.
almost forgot...kelly did #2 on the potty three times last week and #1 once.....woooo hooo.....
We're waiting for approval on a wheelchair/ stroller for Kelly. Hopefully it'll be approved soon.
Well, gotta go...blog ya' later.....
